Tag Archives: Type 1 Diabetes

DBlogWeek Day 7: My Favorite Things

As I thought about this topic today while we walked our second JDRF walk this year, I had Julie Andrews singing in my head about a few of her favorite things:

Raindrops on roses and whiskers on kittens

Cream colored ponies and crisp apple strudels

Snowflakes that stay on my nose and eyelashes

Silver white winters that melt into springs

These are a few of my favorite things

When I’m feeling sad
I simply remember my favorite things
And then I don’t feel so bad

Watching these little ones perform at the end of the JDRF walk today was priceless. They made the crowd smile.

Watching these little ones perform at the end of the JDRF walk today was priceless. They made the crowd smile.

As you can tell, a lot of music seems to pop into my head, a lot! Diabetes isn’t the worst thing that could ever happen, but it’s far from my favorite. This topic is supposed to be about looking back at the week of blogging, and what the favorite part of the week was.

One of my favorite memories of this past week is that I actually completed the full week of blogging! I tried for the first time last year, and I failed at doing it every day. It takes a lot of commitment to blog everyday about a predetermined topic. I am proud of myself for doing it this year! And I look forward to next year.

Another of my favorite things about this past week is having a new person comment not once but twice on a blog. My favorite being the comment on Day 4. I never really expected people other than family and friends to actually read the blog. So it is really cool that someone new has decided to read and comment. Thank you Kelley for stopping by and showing some love to a new blogger. You made me smile and you made my week!

 

2014 JDRF Walk to Cure Diabetes Family Fundraising Letter

It’s hard to believe that February 22, 2014 will be our 6th year walking at the JDRF Walk to Cure Diabetes. It will be our 5th year of having our own family team.  On November 23rd, we celebrated my 5th year of living with Type 1 Diabetes.

Last year, at the walk, I was one of the “Thank You” Kids. I went up on the stage in front of thousands of people to help hold up letters that spell out THANK YOU when the total amount raised for the walk was announced. I was scared and excited to have the honor to participate.

THANK YOU FOR ALL OF YOUR SUPPORT!

THANK YOU FOR ALL OF YOUR SUPPORT!

Over the past year, I participated in many activities. I am a member of the 4H program in my county. For the past 3 county fairs I have done a project on Type 1 Diabetes. I hope that my projects will help educate others about this autoimmune disease that affects millions of people.

I played volleyball and softball through the community ed program at school. I participated in the Girl Scouts swim team for the second year.  I participated in two 5K runs this past summer and plan to participate in more. Every day I show the world that no matter what diabetes throws my way, I WON’T let it stop me from doing what I love.  I love to attend diabetes camp; it is my “home away from home for one week!”

I wear an insulin pump and a continuous glucose monitoring(CGM) system. Sometimes I feel like a robot or cyborg, with everything that is attached to my body. I poke my fingers to check my blood sugar approximately 10 times a day. My insulin pump site is changed every 2-3 days, and my CGM site is changed once a week. When I sleep my mom makes sure that I stay safe. She checks my blood sugar and gives me sugar when my blood sugar is too low, and gives me insulin if my blood sugar is too high.

I enjoy raising money for JDRF, to help find a cure for diabetes. JDRF is the largest charitable supporter of T1D research; JDRF is currently sponsoring $530 million in scientific research in 17 countries. In 2012, JDRF provided more than $110 million to T1D research. In 2012, Forbes magazine named JDRF one of its five All-Star charities, citing the organization’s efficiency and effectiveness.

JDRF was created, and is still led by people with a personal connection to T1D. Whether it’s providing funding for a late-stage clinical trial, advocating faster regulatory approval of new devices, or partnering with a company on research that might not otherwise receive funding, every decision JDRF makes is driven by their commitment to achieving a world without T1D. We are proud to be part of the JDRF team, where we are working with them to turn Type One into Type NONE!

I am also doing what I can to help find a cure, by participating in different research trials with T1D Exchange. I dream of saying, “I once had Type 1 Diabetes” and being able to say thanks to all the amazing people, like YOU, who helped in finding a cure! We have started our fundraising campaign for 2014, with a goal of raising $3000 as a family, and $6000 as a family team this year. If you would like to join my team, please go here to register as a member of my team. If you can’t be with me on walk day, you can register to be a virtual walker and walk where you live. I hope you will join my team and help me meet my fundraising goal this year.

Please help us reach our goal and help find a cure for Type 1 Diabetes.  Your donation is tax-deductible. You can support us online here or you can make a donation in person or by mail. We look forward to seeing your name on our list of friends helping to find a cure! Help make Type One into Type NONE! We can’t do it without YOU!

Dreaming of a Cure

Countdown to the JDRF Walk to Cure Diabetes 2014

82 days until our JDRF Walk to Cure Diabetes 2014!

We have a lot of fundraising to do over the next 82 days! Our family team is going to shoot for raising $6,000. A few fundraising ideas we have so far:               

 

Sneakers with messages of support  from classmates.

Sneakers with messages of support from classmates.

  • We will be selling scarves, boas, jewelry.
  • We will be putting out change buckets again.
  • We will be putting out JDRF sneakers again.
  • We are hoping that the school will allow us to do a fundraiser of sneakers through the whole school. As well as my daughter wants to do a change challenge like she did last year between her pod of classrooms.
  • We will be mailing out our family walk letter and asking our family and friends to help us in raising money to help in finding a cure.
  • We need to recruit more people to register for our walk team, the more people we have helping raise money means that each person has less to raise to meet the team goal that has been set.

We will be blogging about our countdown to the walk, and what we are doing. We will also be blogging about what the walk means to each of us. We hope to get a few guest bloggers as well. So if you are a family member or friend who has been with us for these walks, we might ask for you to write something up for us to post on here.

Progress, it’s done in baby steps!

Please take some time to read this blog by Diabetes Dad This could be it…

I got teary eyed when I read this blog, my hopes for the dream of a cure soared! Will it be? Can it really be? Is it really progressing this quickly? Is this really what we are all waiting for, what will it be? I was filled with hope, hope for freedom. To be free of this disease. To be free of needles, the smell of insulin, the d-trash that seems to accumulate so quickly. Just to be FREE!

Then the announcement came – Biological Cure. A mini organ. A BioHub. BioHUB It would sense blood sugar and release insulin in REAL TIME?!?! Please, yes continue working on this scientific breakthrough!

An apology of sorts…

I don’t think Diabetes Dad has any reason to apologize. He never directly stated that a cure was within direct reach, but he did give hope. Hope that so many people are now angry over.

Hope is such a powerful thing. I hope for so many things as a sister of 2 t1’s and as the mother of a t1. I hope for days and nights of number in good ranges – not so high or so low that it can cause complications in the future. I hope for sleep. I hope that the supplies we use on a daily basis will work properly – that the meter reads correctly, that the pump works and delivers insulin correctly, the the cgm works properly. And I hope for a day when I can say “my brothers and my daughter are FREE from Type 1 Diabetes1” I won’t lose my sense of wonder or hope.

I don’t feel that Diabetes Dad was misleading, but that he, like so many of us, was full of excitement of the way that things are moving. And I’m so thankful and hopeful of the progress that has been made to this date.

Yesterday when I read Diabetes Dad’s article I posted on my Facebook page “Please let it be true! Not false hope”.
I was asked by a fellow D-Mom “What would “True” Mean to you. and what would “False hope” be? Like when you read it, what did you THINK it might be?”
My reply: “True that there would be a cure. That my two brothers and my daughter would be able to live their lives like the rest of us – no more needles, no vials of insulin, no more late nights of checking blood sugars and not wondering if my daughter will make it through the night.
No more fights with my daughter when it comes to site changes, or blood sugar checks. No more counting and weighing of carbs and food before getting to eat.
False hope – getting your hopes up, that a cure is just around the corner, only to find out that their idea of a cure isn’t what my idea of a cure its, and their around the corner and my around the corner are really a difference of 100 years.”

So now, I think of this conversation and ask myself – Is it true? Was it false hope? I believe it is true, that we are moving forward. That we are progressing in the right direction. Progress, is done in baby steps. Remember when we learned to walk. Baby steps!

It is hope-inspiring! False hope – NO! I don’t feel that the ‘teaser article’ “This could be it…” from March 4th gave me any false hope, in fact it inspires more hope. More hope for more small baby steps. More hope for moving forward.

I asked my 10 yr old daughter – what does CURE mean to you – her answer:
1. NO more needles
2. NO more pokes
3. Being able to go to friends’ houses all day.
4. Being able to spend the night at friends’ houses for birthdays.
5. Able to play non-stop
6. JUST TO BE FREE!!!

Free – just to be free! Free of tubing, free of needles, free of constant fear, free of constant supervision. FREE! Can you just imagine that feeling? To just BE FREE! What an amazing concept!

And I agree. The BioHub would do all of that! So would it be a cure? I think, that just maybe it would be!

Thank you! I look forward to reading more of the great things that DRI and Diabetes Dad write in the future!

I’m excited and hopeful as the scientists around the world continue to work towards being FREE of this disease.