Please take some time to read this blog by Diabetes Dad This could be it…
I got teary eyed when I read this blog, my hopes for the dream of a cure soared! Will it be? Can it really be? Is it really progressing this quickly? Is this really what we are all waiting for, what will it be? I was filled with hope, hope for freedom. To be free of this disease. To be free of needles, the smell of insulin, the d-trash that seems to accumulate so quickly. Just to be FREE!
Then the announcement came – Biological Cure. A mini organ. A BioHub. BioHUB It would sense blood sugar and release insulin in REAL TIME?!?! Please, yes continue working on this scientific breakthrough!
An apology of sorts…
I don’t think Diabetes Dad has any reason to apologize. He never directly stated that a cure was within direct reach, but he did give hope. Hope that so many people are now angry over.
Hope is such a powerful thing. I hope for so many things as a sister of 2 t1’s and as the mother of a t1. I hope for days and nights of number in good ranges – not so high or so low that it can cause complications in the future. I hope for sleep. I hope that the supplies we use on a daily basis will work properly – that the meter reads correctly, that the pump works and delivers insulin correctly, the the cgm works properly. And I hope for a day when I can say “my brothers and my daughter are FREE from Type 1 Diabetes1” I won’t lose my sense of wonder or hope.
I don’t feel that Diabetes Dad was misleading, but that he, like so many of us, was full of excitement of the way that things are moving. And I’m so thankful and hopeful of the progress that has been made to this date.
Yesterday when I read Diabetes Dad’s article I posted on my Facebook page “Please let it be true! Not false hope”.
I was asked by a fellow D-Mom “What would “True” Mean to you. and what would “False hope” be? Like when you read it, what did you THINK it might be?”
My reply: “True that there would be a cure. That my two brothers and my daughter would be able to live their lives like the rest of us – no more needles, no vials of insulin, no more late nights of checking blood sugars and not wondering if my daughter will make it through the night.
No more fights with my daughter when it comes to site changes, or blood sugar checks. No more counting and weighing of carbs and food before getting to eat.
False hope – getting your hopes up, that a cure is just around the corner, only to find out that their idea of a cure isn’t what my idea of a cure its, and their around the corner and my around the corner are really a difference of 100 years.”
So now, I think of this conversation and ask myself – Is it true? Was it false hope? I believe it is true, that we are moving forward. That we are progressing in the right direction. Progress, is done in baby steps. Remember when we learned to walk. Baby steps!
It is hope-inspiring! False hope – NO! I don’t feel that the ‘teaser article’ “This could be it…” from March 4th gave me any false hope, in fact it inspires more hope. More hope for more small baby steps. More hope for moving forward.
I asked my 10 yr old daughter – what does CURE mean to you – her answer:
1. NO more needles
2. NO more pokes
3. Being able to go to friends’ houses all day.
4. Being able to spend the night at friends’ houses for birthdays.
5. Able to play non-stop
6. JUST TO BE FREE!!!
Free – just to be free! Free of tubing, free of needles, free of constant fear, free of constant supervision. FREE! Can you just imagine that feeling? To just BE FREE! What an amazing concept!
And I agree. The BioHub would do all of that! So would it be a cure? I think, that just maybe it would be!
Thank you! I look forward to reading more of the great things that DRI and Diabetes Dad write in the future!
I’m excited and hopeful as the scientists around the world continue to work towards being FREE of this disease.