Tag Archives: support

2014 JDRF Walk to Cure Diabetes Family Fundraising Letter

It’s hard to believe that February 22, 2014 will be our 6th year walking at the JDRF Walk to Cure Diabetes. It will be our 5th year of having our own family team.  On November 23rd, we celebrated my 5th year of living with Type 1 Diabetes.

Last year, at the walk, I was one of the “Thank You” Kids. I went up on the stage in front of thousands of people to help hold up letters that spell out THANK YOU when the total amount raised for the walk was announced. I was scared and excited to have the honor to participate.

THANK YOU FOR ALL OF YOUR SUPPORT!

THANK YOU FOR ALL OF YOUR SUPPORT!

Over the past year, I participated in many activities. I am a member of the 4H program in my county. For the past 3 county fairs I have done a project on Type 1 Diabetes. I hope that my projects will help educate others about this autoimmune disease that affects millions of people.

I played volleyball and softball through the community ed program at school. I participated in the Girl Scouts swim team for the second year.  I participated in two 5K runs this past summer and plan to participate in more. Every day I show the world that no matter what diabetes throws my way, I WON’T let it stop me from doing what I love.  I love to attend diabetes camp; it is my “home away from home for one week!”

I wear an insulin pump and a continuous glucose monitoring(CGM) system. Sometimes I feel like a robot or cyborg, with everything that is attached to my body. I poke my fingers to check my blood sugar approximately 10 times a day. My insulin pump site is changed every 2-3 days, and my CGM site is changed once a week. When I sleep my mom makes sure that I stay safe. She checks my blood sugar and gives me sugar when my blood sugar is too low, and gives me insulin if my blood sugar is too high.

I enjoy raising money for JDRF, to help find a cure for diabetes. JDRF is the largest charitable supporter of T1D research; JDRF is currently sponsoring $530 million in scientific research in 17 countries. In 2012, JDRF provided more than $110 million to T1D research. In 2012, Forbes magazine named JDRF one of its five All-Star charities, citing the organization’s efficiency and effectiveness.

JDRF was created, and is still led by people with a personal connection to T1D. Whether it’s providing funding for a late-stage clinical trial, advocating faster regulatory approval of new devices, or partnering with a company on research that might not otherwise receive funding, every decision JDRF makes is driven by their commitment to achieving a world without T1D. We are proud to be part of the JDRF team, where we are working with them to turn Type One into Type NONE!

I am also doing what I can to help find a cure, by participating in different research trials with T1D Exchange. I dream of saying, “I once had Type 1 Diabetes” and being able to say thanks to all the amazing people, like YOU, who helped in finding a cure! We have started our fundraising campaign for 2014, with a goal of raising $3000 as a family, and $6000 as a family team this year. If you would like to join my team, please go here to register as a member of my team. If you can’t be with me on walk day, you can register to be a virtual walker and walk where you live. I hope you will join my team and help me meet my fundraising goal this year.

Please help us reach our goal and help find a cure for Type 1 Diabetes.  Your donation is tax-deductible. You can support us online here or you can make a donation in person or by mail. We look forward to seeing your name on our list of friends helping to find a cure! Help make Type One into Type NONE! We can’t do it without YOU!

Dreaming of a Cure

Diabetes Month Photo a Day – Day 17

Day 17: DOC

The Diabetes Online Community is well known as the DOC. This community is a place (or places) where those with diabetes or the parents of a child with diabetes – no matter what type – can find someone who ‘gets it’.

Some of these communities are JDRFtudiabetesChildren With Diabetes (CWD), and Glu are just some of the places that you can find support for ‘almost’ whatever you are looking for. Along with this there are blogs, so many of them, which are all amazing in their own way. You can also find communities of support on Facebook. In this community you never have to feel alone there will always be someone who’s been where you are and can help you through it and you will come out feeling empowered and able to take on the world.

A few of the amazing people we've met from the D.O.C.

A few of the amazing people we’ve met from the D.O.C.

We’ve had the pleasure of meeting a few from this community, in person. A few years ago we met Dr. Natalie Strand, she is not only a person with diabetes but she was also on the winning team in the 17th season of The Amazing Race. We met Cynthia in Sept 2012, who blogs at Diabetes Light. Yesterday, we met Kerri who blogs at Six Until Me.

We’ve also met so many others locally through JDRF and just by pure luck. It’s so amazing to have these connections with other people who know what it’s like to have a pump site or CGM site that fail, that understand the 2 am blood sugar checks, the sleepless nights, the hopes and dreams that they have, exchanging new ideas and recipes, the frustration of dealing with the ins and outs of a disease that can not be controlled perfectly no matter how great you micromanage it! Who else would completely understand all the D terminology that we use on a daily basis?!?

The DOC simply is amazing in this journey with diabetes, one that I’m thankful to be part of in this journey. Without these amazing people, who are also on this journey, I would feel alone. I hope to attend the CWD conference in the near future to meet so many more of these online friends from the DOC.

Diabetes Month Photo a Day – Day 9

Day 9: Support

When life gives you lemons, make lemonade. That’s what they say, right? I say having a great support system is necessary when dealing with the lemons life throws your way.

When you have a chronic illness, it’s even more important to have a great support system. We found an amazing CDE (Certified Diabetes Educator) and Endocrinologist. They are always there to answer questions and keep us going on the right track. Whether it is adjusting basal rates, insulin to carbohydrate ratios, or lending a sympathetic ear these two are amazing and we are lucky to have them on our team!

Diabetes is a lot of balancing. Balancing of food, activity, insulin. My support team helps keep me balanced and on the right path. We are thankful for a great team of friends and medical personnel.

 

My T1D Support Team  - CDE & Endo

My T1D Support Team – CDE & Endo