Note:I am not a trained professional, this is not medical advice. If you are seeking medical advice please contact your endocrinologist.
When we left the hospital way back in 2008 on Thanksgiving Day, I tried to figure out the best way to remember the date that insulin bottles were opened on our two hour drive home. Once we got home, I went digging in the junk drawer and found my garage sale price stickers. They were pink, yellow and green circles. They fit perfectly on the bottom of an insulin vial. So the day I would start using a new insulin vial, I would write the date on the sticker and stick it on the bottom of the vial.
We started noticing that 14 days into a vial of insulin that Little Miss’s blood sugars would decide to jump sky high. Is she sick, is something wrong with the pump, is the site bad? So many questions! No matter what we did, those stubborn blood sugars wouldn’t come down. Pump cartridge changes, site changes, increased insulin (with syringe and through pump) we did it all. After 3 days of fighting highs and doing everything I could think of, I grabbed a new vial of insulin. Within 2 hours of new insulin in a new cartridge and a new pump site and the blood sugars were coming down. Another 14 days into this vial (which I made sure we were kept in the fridge, just in case that was the issue) and we ran into the same issue. I called up the CDE and we got started on using insulin pen vials. We haven’t run into this issue since. This is one of the best insulin management things we have ever done.
Little Miss learned at diabetes camp that 1 serving of chips is 1 adult handful or 2 child sized handfuls. She still uses that for measuring chips when we go to family functions and potlucks. It has been one of the best things for her to be able to figure out.
We have black sharpie marker lines on cups in our house that mark the 4 oz and the 8 oz measurements. These lines work better than measuring cups for kids. She is able to get herself drinks and know how much she is actually having.
Juice boxes, how did I ever live without so many juice boxes?!? We stock up on 2 difference sizes one has 15 grams carbs and the other has 24 grams carbs. They are used mostly for overnight lows. It’s amazing how I can put a juice box straw up to her lips and she will suck that thing down super fast sucking the box in on its self.
It’s DBlogWeek. And the topic for day 1 is Change the World. Does anyone else hear Eric Clapton’s song “Change the World” playing in their head?
We do our part to ‘change the world’ by helping to dispel myths about all things T1D.
We hope that eventually people will understand that T1D isn’t caused from eating candy or drinking pop. It isn’t caused from too little or too much exercise. There is NO CURE for T1D.
Having a pump doesn’t mean that your diabetes is automatically in control. Having a pump doesn’t mean that you never have a low or high blood sugar. Having a pump means less shots of insulin.
Checking your blood sugar, giving insulin injections, putting in an insulin pump site or a CGM sensor aren’t fun, and they can hurt. You never get use to them, no matter how long you do it.
T1D isn’t a one size fits all disease. Just because it works for one person, doesn’t mean it will work for everyone else.
We will continue to work on dispelling myths about T1D, in hopes that someday people will not believe the myths.
This past year we participated in the Spare a Rose, Save a Life campaign around Valentine’s Day. We spared roses and helped supply life saving insulin for a child. Over $27K was collected and 454 children’s lives were saved for a full year! How amazing is that?!?!
Tonight my dear daughter’s pump site became disconnected. Now I don’t know how it happened or even when it happened. But it did happen.
Her blood sugar was high when I put her to bed, I gave her a correction thinking that maybe I didn’t calculate carbohydrates correctly for dinner.
Then two hours later, I recheck her blood sugar again to make sure it is coming down. Instead, her glucose meter greeted me with HIGH GLUCOSE OVER 600! So I roll her sleeping body over to find her pump site no longer attached to her little body.
I don’t know how long she was without any insulin, but I do know that when the words HIGH pop up on the glucose meter that there is always a chance of ketones. So I got her pump ready to go, got a new pump site on her body and the pump going again with a massive correction. Then I checked her ketones. Yep, they are present. It will be a long night.
When living with a chronic illness or disease, like Type-1 Diabetes, you wear a medical alert bracelet. This is to notify first responders or others that might come in contact with the person in an emergency.
In any house, you have alerts. Alarm clocks, timers on the microwave or stove, thermostats and sometimes even our smoke alarms. We have these things to warn or tell us when something is done or when something is wrong.
In our house, alerts are the norm. We have lots of medical alerting devices along with the above mentioned ones. They too alert us if something is wrong.
The insulin pump will alert if there is an occlusion in the tubing or cannula, if the cartridge is running low on insulin, if the battery is getting low, or if there is a problem with the pump when it goes through it’s safety checks. The continuous glucose monitor (CGM) will alert if it senses the blood sugar rising or falling too fast, if the blood sugar is too high or too low, if it’s battery is getting low, if the sensor isn’t reading like it should, and if the sensor has failed.
We have alerts/alarms to help us react quicker to impending problems. Without a medical alert bracelet, someone may not know that my daughter has diabetes and not get her the help she needs immediately. Without the CGM alerts, we might not catch a low blood sugar until it is too low. Without the pump alerts, we wouldn’t know that delivery has stopped until the blood sugar is too high. We live with these alerts for a reason, to help save a life!