Diabetes can sometimes seem to play by a rulebook that makes no sense, tossing out unexpected challenges at random. What are your best tips for being prepared when the unexpected happens? Or, take this topic another way and tell us about some good things diabetes has brought into your, or your loved one’s, life that you never could have expected?
I thought about this topic most of the day. What part of our life with diabetes should I share? For all the unexpected challenges – new restaurants, new foods, new activities, new basal rates, new I:C ratios – anything that comes up we do the best we can at the time. Then we watch and correct as necessary. Whether it’s with insulin or glucose. Over the past several years, the most important thing I’ve learned is that most errors can be fixed. I’ve also learned that patience is very important when waiting for blood sugars to come back up or down. Stacking insulin and overloading on carbohydrates because of not being patient leads to causing a rollercoaster of blood sugars. Staying calm is always a plus, but it’s easier said than done.
The best things that have happened to our family since my daughter was diagnosed is meeting so many amazing people. People that understand, that have been there, that are willing to help and listen and loan supplies when they are dealing with financial and insurance issues. We have met some of the best people because of my daughter’s diagnosis. People that I’m glad to call part of our big d family.
Six years ago, as we prepared for Halloween, Little Miss was 6 years old, and we had no idea of the war that raged inside her body. She dressed as a clown, went out, and had fun, without a care in the world.
Halloween marks the beginning of her diabetes “anniversary”, and this year marks the point of diabetes having been with her for half of her life. From now on, she will have lived longer with diabetes than without. This year, however, has been an eerie reminder of the season six years ago. Halloween fell on a Friday again for the first time in six years, her diagnosis date will fall on a Sunday again, and Thanksgiving marks the day she came home from the hospital, and we started a new chapter in her life.
Fast forward six years. This Halloween, we have to carry around a bunch of diabetes supplies, and we have to think about how active she will be, and how many carbs are in the candy she eats. Her favorite saying has become this: “Diabetes can’t and won’t stop me from doing the things I love.”
She still wants to dress like a clown though, and she still has fun on Halloween. Some times, a lot can change in six years. Some times, hardly anything changes at all.
Today we lost a member of our family. This member joined us November 2008. He’s always been with us. Tagging along, everywhere. A little brother. An annoying little brother. One you wish would never had come along, that didn’t have to tag along. He was a vampire, a blood sucker. A glucose meter. He never had a name.
While we were hiking for 2.5 hours, he let go and wandered away. We looked after we realized he was missing. But alas, we couldn’t find him. We are thankful we had his younger sibling along to help once we realized he was missing.
His twin, out in the open for all to see.
His twin, in disguise.
Have you seen him laying around? We were grateful for the years he was with us. Through the highs and lows life threw our way. He will be missed, greatly. Thanks for your time!
It’s DBlogWeek. And the topic for day 1 is Change the World. Does anyone else hear Eric Clapton’s song “Change the World” playing in their head?
We do our part to ‘change the world’ by helping to dispel myths about all things T1D.
We hope that eventually people will understand that T1D isn’t caused from eating candy or drinking pop. It isn’t caused from too little or too much exercise. There is NO CURE for T1D.
Having a pump doesn’t mean that your diabetes is automatically in control. Having a pump doesn’t mean that you never have a low or high blood sugar. Having a pump means less shots of insulin.
Checking your blood sugar, giving insulin injections, putting in an insulin pump site or a CGM sensor aren’t fun, and they can hurt. You never get use to them, no matter how long you do it.
T1D isn’t a one size fits all disease. Just because it works for one person, doesn’t mean it will work for everyone else.
We will continue to work on dispelling myths about T1D, in hopes that someday people will not believe the myths.
This past year we participated in the Spare a Rose, Save a Life campaign around Valentine’s Day. We spared roses and helped supply life saving insulin for a child. Over $27K was collected and 454 children’s lives were saved for a full year! How amazing is that?!?!
Celebrating birthdays don’t just happen at home or out with family and friends but also at school. This past weekend we celebrated turning 12. We went bowling with family and friends. We had delicious cupcakes. We dealt with low blood sugars. But we had an amazing time celebrating.
When the weekend was coming to an end we had to figure out what to take for the classroom treat. Classroom treats have to be store bought and if possible individually wrapped. Not to hard or a choice, right? Most of the kids take cupcakes or brownies. Something full of sugar.
My daughter was concerned about a few of her classmates. She has one classmate with celiac – so she can’t have wheat and gluten. She also has a classmate that has a nut allergy.This makes things more difficult. Other kids bring things that are full of gluten and the one girl never gets to have the treat that is brought.
I think that having diabetes has made my daughter more compassionate to others around her. My daughter has had her share of being left out of snacks and classroom treats because of there being no nutritional information and not having someone around to help figure out how many carbohydrates and therefore how much insulin she needed. She didn’t like seeing her classmates and friends go through the same things.
So after questioning a few different people we know who have food allergies to find a good snack that she could take to school for her birthday treat, we decided on individual bags of baby carrots and mini boxes of raisins.
Healthy and all natural treat.
They are naturally gluten free, nut free and healthy! She was worried that kids wouldn’t like the snack and that they would make fun of her choice for a treat. After school I asked how the treat went over and she told me that everyone loved her choice.
Showing birthday treats for the classroom.
Healthy and natural treats are always good, no matter what the age or occasion. I wish more parents would send healthy treats to school.
Tonight my dear daughter’s pump site became disconnected. Now I don’t know how it happened or even when it happened. But it did happen.
Her blood sugar was high when I put her to bed, I gave her a correction thinking that maybe I didn’t calculate carbohydrates correctly for dinner.
Then two hours later, I recheck her blood sugar again to make sure it is coming down. Instead, her glucose meter greeted me with HIGH GLUCOSE OVER 600! So I roll her sleeping body over to find her pump site no longer attached to her little body.
I don’t know how long she was without any insulin, but I do know that when the words HIGH pop up on the glucose meter that there is always a chance of ketones. So I got her pump ready to go, got a new pump site on her body and the pump going again with a massive correction. Then I checked her ketones. Yep, they are present. It will be a long night.
82 days until our JDRF Walk to Cure Diabetes 2014!
We have a lot of fundraising to do over the next 82 days! Our family team is going to shoot for raising $6,000. A few fundraising ideas we have so far:
Sneakers with messages of support from classmates.
We will be selling scarves, boas, jewelry.
We will be putting out change buckets again.
We will be putting out JDRF sneakers again.
We are hoping that the school will allow us to do a fundraiser of sneakers through the whole school. As well as my daughter wants to do a change challenge like she did last year between her pod of classrooms.
We will be mailing out our family walk letter and asking our family and friends to help us in raising money to help in finding a cure.
We need to recruit more people to register for our walk team, the more people we have helping raise money means that each person has less to raise to meet the team goal that has been set.
We will be blogging about our countdown to the walk, and what we are doing. We will also be blogging about what the walk means to each of us. We hope to get a few guest bloggers as well. So if you are a family member or friend who has been with us for these walks, we might ask for you to write something up for us to post on here.
Diabetes awareness month has come to an end today, but we will always help bring awareness so that others understand type 1 diabetes.
While we dream for and hope for a cure for type 1 diabetes in our future, we know that it is a long and windy road. Along the way we will stumble and fall many times, yet we will get back up and carry on. Every day we will do this. Until there is a cure.
The future for a person with diabetes is long and uncertain.
Another dream for the future is the career my daughter wants to pursue. She wants to be a veterinarian or a veterinary tech. She loves animals and wants to work with them.